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Category Archives: Sturge-Weber Syndrome

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Hayden

October 2014 by waitingchildinfo

Hayden was born in October 2014 and found abandoned when he was around 7 months old. His medical file suggests craniofacial hemangioma, encephalatrophy with left limbs motor dysfunction, abnormal ABR of both ears. Potential Sturge-Weber Syndrome. Don’t miss his updates below! SPECIAL FOCUS CHILD  At the age of 7-9 months Hayden could raise his head while lying on his stomach and use his hands to hold toys and put them in his mouth. He reacted to the word, “no,” and could […]

Categories: Boys, CHINA PROGRAM, GRANT AVAILABLE, Hearing Loss, Hemangioma, Limb Difference, SHARED LIST CHILDREN, SPECIAL FOCUS CHILDREN, Sturge-Weber Syndrome

Leo

April 2009 by waitingchildinfo

***   $2,500 GRANT AVAILABLE FOR QUALIFYING FAMILIES  *** Leo was born in April 2009 and has a hemangioma (port wine stain) on his face.  He also has some stiffness in his right limbs.  He can run and jump but sometimes loses his balance. Leo was hosted in the US for three weeks in 2016. US doctors believe he has Sturge Weber Syndrome. SPECIAL FOCUS CHILD RELEASED TO THE SHARED LIST Leo is said to be a little introverted and shy, […]

Categories: Boys, Children Hosted in US, CHINA PROGRAM, GRANT AVAILABLE, Hemangioma, Port Wine Stain, SHARED LIST CHILDREN, SPECIAL FOCUS CHILDREN, Sturge-Weber Syndrome, SUMMER HOSTING PROGRAM

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