Julie

***   $6,500 GRANT AVAILABLE   ***

Julie was born in August 2015 and was found abandoned as a newborn. She has been diagnosed with Congenital Heart Disease and poor lung function. She has been under the care of a wonderful NGO.

SPECIAL FOCUS CHILD RELEASED TO THE SHARED LIST

Julie is said to be an outgoing, happy and quiet girl with a ready smile. She had surgery to correct double outlet right ventricle, but may need additional surgery for pulmonary hypertension. Her current video shows her on oxygen. She has slight delays in speech development and intelligence. She loves attention, is unhappy when she feels ignored, but perks up with cuddles and her favorite musical toys.

  

Julie understands adults’ instructions, responds when asked for objects and cooperates when being dressed. As she’s still very young, she does not yet have bowel and bladder control and needs help with care, but she crawls, holds objects, and can scribble with a pen.

PASSWORD TO VIEW VIDEO:  waiting

MARCH 2018 UPDATE BELOW: 

A volunteer nurse spent time with Julie recently and said, “I would say she has more than slight delays in speech development and intelligence. I don’t think she says a single word. I don’t know if the scooting around that she does counts as crawling. She also would have no idea what to do with a pen if she was handed one. It’s hard for me to tell if she can understand adult’s instructions. I’m not trying to be negative, just want to be accurate. I tried to get some pictures and videos this week, but she isn’t being very cooperative. I know she can sit independently. But today she would not do it and kept putting herself on the floor as soon as I let go of her. I think she probably can breathe better when she isn’t upright. She also begins to cough a lot with even a small amount of activity.”

Any family considering Julie should be prepared for significant cognitive and developmental delays. It’s hard to say if these delays can be attributed to her very rough start (institutionalization, heart disease and severe malnutrition) and/or other factors.

JULY 2018 UPDATE BELOW: 

Julie “is very delayed. With good intervention I think she can show improvement, but I would hesitate to say that she could “catch up”. Actually, we noticed a striking similarity when comparing her facial features to those of children with some forms of holoprosencephaly. That is a hugely scary diagnosis, but some individuals are very mildly affected. However, we did a brain scan last month to see if she had the single lobe structure typical of that defect and she did not. To be honest, I was quite surprised. Still not sure what her actual diagnosis is. She also went back in for cardiac work-up, including a heart cath, to investigate the issues with her severe pulmonary hypertension. Conclusion was that there is no surgical treatment that will help her.”

PASSWORD TO VIEW VIDEO:  waiting

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